Live evidence index

UK retinitis pigmentosa research, made clearer.

UK-affiliated papers, UK clinical-trial sites and British-funded research—organised and summarised in plain English.

Explore current research

Know the difference

Approved treatment is not the same as promising research.

Established: Luxturna is an approved gene therapy for eligible people with disease caused by mutations in both copies of the RPE65 gene. It is not a treatment for every form of RP.

Experimental: Every trial, grant and laboratory study shown in the live research feed should be treated as investigational unless its source explicitly says otherwise.

Read the NICE guidance

Research map

Follow every major treatment direction

The live feed groups research by how a treatment is intended to work. Categories are based on language in each original record.

—UK-focused records indexed
—active or recruiting UK trials
—KLHL7 records
—UK-focused feeds online

Dedicated gene focus

KLHL7 research

KLHL7 variants can cause different inherited retinal conditions. This view gathers UK-affiliated papers, UK-site trials and British-funded work that name KLHL7, so emerging findings are easier to follow without implying that an experimental result is a treatment.

UK research feed

Latest UK RP evidence

Connecting to research sources

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Direct from the source

Trusted UK research services

No scraping is used. Papers and grants come from structured Europe PMC services, while trial records are restricted to studies with UK locations.